So, how are we doing?
*May 8, 2014: Shannie is FANTASTIC!!! In January, she was diagnosed with a secondary condition called "refelx neurovascular dystrophy" and she was able to receive treatment for this problem. Her chronic pain is greatly diminished, the vascular problems have nearly disappeared, and she's feeling better than EVER!! Here's the information on RND and how she was helped: StopChildhoodPain.org
We're still on the hunt for property for Camp Diasozo and while it's been a long road, we're not giving up. Our family is changing and growing and things are great. God is good!
Our family will be attending the Scleroderma Foundation's National Patient Education Conference (as Camp Diasozo) in July again this year. We hope to meet lots of new people and make some great contacts. Blessings to all!
*October 17, 2013: The Camp Diasozo fundraiser in June was a huge success- we raised about $5,000 for the camp!! Many thanks to all who came out and supported us.
In July, Shannie, Julie, and Sarah were blessed to be offered a scholarship to attend the Scleroderma Foundation's national patient conference in Atlanta. It was amazing and we all loved meeting so many people facing the same issues with this disease! What an encouragement for all of us. :-)
At the beginning of October, we were able to participate in the Scleroderma Foundation's Stepping Out to Cure Scleroderma 5k. The group raised more than $31,000 towards finding a CURE for scleroderma!!
Unfortunately, over the past several months, Shannie has been facing some health challenges and is having to undergo many new tests in an attempt to find answers. Prayers are appreciated for Shannie as this has been a tough time for her.
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